Daily Digest.

Every update sent to Darlene, in one place.

Tuesday, 4 August 2026 · 1 update

News

Meet Nathan Lee Davies

Ataxia UK

Friday, 31 July 2026 · 1 update

News

Concerts and Holidays by Clare Sheeran

Ataxia UK

Thursday, 30 July 2026 · 1 update

News

Oligodendrocyte Models of Spastic Ataxia 8 for Remyelination (OLYSPAX8)

Ataxia UK

Friday, 24 July 2026 · 11 updates

PubMed

[CANVAS and RFC1-related disease - a broad clinical spectrum from cough and neuropathy to cerebellar ataxia]

Andrén K, Paucar M, Thonberg H · Lakartidningen

News

Q&A: Fay Grant On Bringing Her Entrepreneur Spirit To Fighting RFC1-CANVAS - Forbes

Forbes

News

An Update on the Adult-Onset Hereditary Cerebellar Ataxias: Novel Genetic Causes and New Diagnostic Approaches - SpringerMedizin.de

SpringerMedizin.de

News

Early Peripheral Nerve Involvement at the Time of Coughing in Patients With RFC1 Intronic Expansion - Neurology® Journals

Neurology® Journals

News

Remote Monitoring of SCA3 Symptoms

Ataxia UK

News

Ataxia UK-funded research shows that targeting sphingolipids protects cells from damage in cell and mouse models of FA

Ataxia UK

News

impact-pr/eSCA – An Intensive, Motor, Personalized, Anywhere, and Challenging Training for Pre- and Early-Ataxic Spino-Cerebellar Ataxia Patients

Ataxia UK

News

Shoes by Clare Sheeran

Ataxia UK

News

CANVAS (Cerebellar Ataxia, Neuropathy, and Vestibular Areflexia Syndrome)

Vestibular Disorders Association

News

CANVAS- (ICU - "I See You" Podcast Ep 41)

Vestibular Disorders Association

News

RFC1-CANVAS Spectrum Disorder: A Story of Hope

RFC1 CANVAS Spectrum Disorder Awareness Channel