Daily Digest.
Every update sent to Darlene, in one place.
Tuesday, 4 August 2026 · 1 update
Friday, 31 July 2026 · 1 update
Thursday, 30 July 2026 · 1 update
Friday, 24 July 2026 · 11 updates
[CANVAS and RFC1-related disease - a broad clinical spectrum from cough and neuropathy to cerebellar ataxia]
Andrén K, Paucar M, Thonberg H · Lakartidningen
Q&A: Fay Grant On Bringing Her Entrepreneur Spirit To Fighting RFC1-CANVAS - Forbes
Forbes
An Update on the Adult-Onset Hereditary Cerebellar Ataxias: Novel Genetic Causes and New Diagnostic Approaches - SpringerMedizin.de
SpringerMedizin.de
Early Peripheral Nerve Involvement at the Time of Coughing in Patients With RFC1 Intronic Expansion - Neurology® Journals
Neurology® Journals
Remote Monitoring of SCA3 Symptoms
Ataxia UK
Ataxia UK-funded research shows that targeting sphingolipids protects cells from damage in cell and mouse models of FA
Ataxia UK
impact-pr/eSCA – An Intensive, Motor, Personalized, Anywhere, and Challenging Training for Pre- and Early-Ataxic Spino-Cerebellar Ataxia Patients
Ataxia UK
Shoes by Clare Sheeran
Ataxia UK
CANVAS (Cerebellar Ataxia, Neuropathy, and Vestibular Areflexia Syndrome)
Vestibular Disorders Association
CANVAS- (ICU - "I See You" Podcast Ep 41)
Vestibular Disorders Association
RFC1-CANVAS Spectrum Disorder: A Story of Hope
RFC1 CANVAS Spectrum Disorder Awareness Channel